Broadwaybabyto<p>When you’re healthy you believe you’ll always be healthy. That if you get sick it’ll be a temporary slow down & you will be back to normal after a few days.</p><p>When you learn that isn’t true, when you come face to face with the reality of how quickly you can lose your health, you become cautious.</p><p>This caution is part of protecting your baseline, and it’s a necessary survival skill when chronically ill. </p><p><a href="https://www.disabledginger.com/p/maintaining-a-baseline-means-everything" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/maintaini</span><span class="invisible">ng-a-baseline-means-everything</span></a></p><p><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://zeroes.ca/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://zeroes.ca/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a></p>
Recent searches
No recent searches
Search options
Only available when logged in.
urbanists.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
We're a server for people who like bikes, transit, and walkable cities. Let's get to know each other!
Administered by:
Server stats:
542active users
urbanists.social: About · Profiles directory · Privacy policy
Mastodon: About · Get the app · Keyboard shortcuts · View source code · v4.3.7
#eds
10 posts · 6 participants · 1 post today
Tom Kindlon<p>(Worcester, Massachusetts)<br>Healthy Controls and people aged 12+ with ME/CFS, <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a>, <a href="https://disabled.social/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a>, long Covid, etc sought for research study</p><p>Image is from MassME April Newsletter</p><p><a href="https://www.massmecfs.org/newsletters/922-2025-04-april-newsletter" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">massmecfs.org/newsletters/922-</span><span class="invisible">2025-04-april-newsletter</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDBrain</span></a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroPASC</span></a><br><a href="https://disabled.social/tags/PosturalOrthostaticTachycardiaSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PosturalOrthostaticTachycardiaSyndrome</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>pots</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>fibromyalgia</span></a></span><br><a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibromyalgia</span></a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibro</span></a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FMS</span></a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FM</span></a></p>
Cassian [main]<p>EDS is weird.</p><p>Sometimes I have to use a wheelchair because of fatigue and to prevent tired hips from just popping out.</p><p>If my hip goes it's better to use crutches because wheelchairing with a subluxed hip is harder than supported walking.</p><p>But today, because my shoulder recently popped out, I can't use a wheelchair or crutches because I need to rest my shoulder.</p><p>So I look less disabled BECAUSE I can't use one of my arms. :D I have to wear my special sunflower lanyard to signal my disability because I don't have mobility aids with me.</p><p><a href="https://eldritch.cafe/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://eldritch.cafe/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a></p>
Olivia Vespera<p><span class="h-card" translate="no"><a href="https://queer.party/@emptyfortress" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>emptyfortress</span></a></span> <a href="https://spacey.space/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://spacey.space/tags/askfedi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>askfedi</span></a> <a href="https://spacey.space/tags/ChronicHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicHealth</span></a> just some hashtags for searchability</p>
Rin<p>Zebra shadows 🦓 🖤🤍🖤🤍🖤</p><p><a href="https://mastodon.nz/tags/monochrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>monochrome</span></a> <a href="https://mastodon.nz/tags/blackandwhite" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>blackandwhite</span></a> <a href="https://mastodon.nz/tags/trees" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>trees</span></a> <a href="https://mastodon.nz/tags/shadows" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>shadows</span></a> <a href="https://mastodon.nz/tags/zebra" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>zebra</span></a> <a href="https://mastodon.nz/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <br><a href="https://mastodon.nz/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a> <a href="https://mastodon.nz/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlossyndrome</span></a></p>
Steph (they/them)<p>I actually had no idea I was hypermobile until my partner (a former sports scientist) started pointing out that my range of motion is abnormal and I bend in ways I shouldn't. </p><p>Then we started noticing other things, like the fact that I am not losing any flexibility with age, my ankles are pronated, my joints click and crunch like crazy, I don't like standing for long periods of time (hurts!) but I can walk FOREVER, I bruise easily, I get dizzy when I stand up and tire quickly despite being quite fit, my knees are AWFUL, I have very long fingers and toes, I've had digestive issues my whole life, I have like no face wrinkles but my hands look like a 60yrold's...</p><p>And then I realised that the weird horrible feeling I get in my hips and shoulder joints sometimes, like they're out-of-joint and unstable, is because THEY ARE. They're subluxating.</p><p>And now I suspect my migraines are partially caused by joint instability. Specifically, my neck. I have an orthopaedic pillow and a cervical traction device and those help a lot.</p><p>Not a huge surprise. <a href="https://hachyderm.io/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ADHD</span></a> and <a href="https://hachyderm.io/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a> are co-morbid. However, I haven't been officially diagnosed. Crucially, I don't have a positive Beighton score: my hypermobility is primarily in my arms and legs. So I don't know if I'd be taken seriously. I also wouldn't consider it disabling. Annoying, maybe. I clearly got a milder case. I know a lot of folks with <a href="https://hachyderm.io/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a> who really suffer!</p><p>So maybe I'll get properly checked one day? For now I'm just working on strengthening my muscles to support my shitty joints. And also on trying to pop my left collarbone back into place, because it's sticking out right now for no good goddamned reason...</p>
This Account Kills Fascists<p><span class="h-card" translate="no"><a href="https://beige.party/@farah" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>farah</span></a></span> Thank you. I've been trying to, yanno, live a life, but I think it just got a hundred times harder. And it wasn't all that easy to begin with. Fucking <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a></p>
More Spoons NutritionWhen I work with kids and teens I often ask if they are a cheese-a-saurus, when I'm getting their diet history. And even though this neologism makes no sense, they usually laugh and affirm that they are. I'm not asking it to shame, I'm asking to figure out how much of their diet is coming from dairy. Dairy is rich in nutrients like protein, calcium, Vitamin A, B12 and phosphorus. <br>
<br>
I'm a bread-a-saurus. Bread is a staple in many cultures and can be equally nutrient dense (depending on the recipe of course). Because I'm a bread-a-saurus I make mine from scratch with Einkorn flour and pumpkin seed protein. I think this loaf turned out especially good and it has about 7-10 grams of protein per slice, which helps me meet my protein goals when I'm only feeling like eating my safe foods. <br>
<br>
Bon appetit friends! <br>
<br>
<br>
<a href="https://pixelfed.social/discover/tags/neurodivergent?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodivergent</a> <a href="https://pixelfed.social/discover/tags/neurocomplex?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurocomplex</a> <a href="https://pixelfed.social/discover/tags/dietitian?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#dietitian</a> <a href="https://pixelfed.social/discover/tags/sensoryfriendly?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#sensoryfriendly</a> <a href="https://pixelfed.social/discover/tags/oregon?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#oregon</a> <a href="https://pixelfed.social/discover/tags/newmexico?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#newmexico</a> <a href="https://pixelfed.social/discover/tags/lowhistaminediet?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#lowhistaminediet</a> <a href="https://pixelfed.social/discover/tags/lowhistamine?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#lowhistamine</a><br>
<a href="https://pixelfed.social/discover/tags/lowfodmap?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#lowfodmap</a> <a href="https://pixelfed.social/discover/tags/ibs?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibs</a> <a href="https://pixelfed.social/discover/tags/ibsdiet?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibsdiet</a><br>
<a href="https://pixelfed.social/discover/tags/sensoryprocessingdisorder?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#sensoryprocessingdisorder</a> <a href="https://pixelfed.social/discover/tags/functionaldietitian?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#functionaldietitian</a> <a href="https://pixelfed.social/discover/tags/nutritionist?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#nutritionist</a> <a href="https://pixelfed.social/discover/tags/adhd?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#adhd</a> <a href="https://pixelfed.social/discover/tags/audhd?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#audhd</a> <a href="https://pixelfed.social/discover/tags/autism?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#autism</a> <a href="https://pixelfed.social/discover/tags/chronicfatigue?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicfatigue</a> <a href="https://pixelfed.social/discover/tags/myalgicencephalomyelitis?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#myalgicencephalomyelitis</a> <a href="https://pixelfed.social/discover/tags/cfsme?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfsme</a> <a href="https://pixelfed.social/discover/tags/integrativenutrition?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#integrativenutrition</a> <a href="https://pixelfed.social/discover/tags/holisticnutrition?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#holisticnutrition</a> <a href="https://pixelfed.social/discover/tags/healthyeating?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#healthyeating</a> <a href="https://pixelfed.social/discover/tags/highlymaskedautism?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#highlymaskedautism</a> <a href="https://pixelfed.social/discover/tags/healthyfood?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#healthyfood</a> <a href="https://pixelfed.social/discover/tags/autisticadults?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#autisticadults</a> <a href="https://pixelfed.social/discover/tags/autistic?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#autistic</a> <a href="https://pixelfed.social/discover/tags/fibromyalgia?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://pixelfed.social/discover/tags/pots?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#pots</a> <a href="https://pixelfed.social/discover/tags/eds?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#eds</a> <a href="https://pixelfed.social/discover/tags/migraine?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#migraine</a> <a href="https://pixelfed.social/discover/tags/actuallyautistic?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#actuallyautistic</a><br>
<br>
This content is for informational purposes only and is not a substitute for professional medical advice. Always consult a qualified healthcare provider for personalized guidance.
Alien_Sunset<p>So I come to the hivemind:</p><p>do any of you all have any recommendations or favorite things that you have used on your own person to help keep you from accidentally injuring yourself? </p><p>Not just hands/fingers/wrists. But also arms/elbows, shoulders, knees and ankles.</p><p><a href="https://dice.camp/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://dice.camp/tags/Hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Hypermobility</span></a> <a href="https://dice.camp/tags/hsd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hsd</span></a><br>3/4</p>
Chronic Illness Humor Funny<p>my skeleton is being a real b*tch</p><p><a href="https://mastodon.social/tags/ra" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ra</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpain</span></a> <a href="https://mastodon.social/tags/jointpainhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpainhumor</span></a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhealth</span></a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointinflammation</span></a></p>
Anya<p>Starting to find the bruises on my body from falling over the other day.</p><p>Each one is met with a moment of "What the heck is tha-oh, yeah."</p><p><a href="https://eldritch.cafe/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonie</span></a> <a href="https://eldritch.cafe/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://eldritch.cafe/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibromyalgia</span></a> <a href="https://eldritch.cafe/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://eldritch.cafe/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://eldritch.cafe/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a></p>
Chronic Illness Humor Funny<p>My joints <br>“let me play you a beat”<br>*snap*<br>*crackle*<br>*pop*</p><p><a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpain</span></a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointinflammation</span></a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhealth</span></a> <a href="https://mastodon.social/tags/jointhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhumor</span></a> <a href="https://mastodon.social/tags/jointpainhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpainhumor</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritishumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritishumor</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedshumor</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/edsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsmemes</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a> <a href="https://mastodon.social/tags/edsfunny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsfunny</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/hedsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedsmemes</span></a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedshumor</span></a> <a href="https://mastodon.social/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlossyndrome</span></a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a></p>
Chronic Illness Humor Funny<p>on my Etsy store [<br><a href="https://www.etsy.com/shop/ChronicIllnessTees?ref=dashboard-header&search_query=disco" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">etsy.com/shop/ChronicIllnessTe</span><span class="invisible">es?ref=dashboard-header&search_query=disco</span></a> ] and RB [ <a href="https://www.redbubble.com/shop/ap/168788542" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">redbubble.com/shop/ap/168788542</span><span class="invisible"></span></a> ]<br><a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedshumor</span></a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a> <a href="https://mastodon.social/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/hedsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedsmemes</span></a> <a href="https://mastodon.social/tags/edsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsmemes</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a></p>
Anya<p>I realised it has been exactly 1 month since I was last physically capable of showering.</p><p>So, in spite of having no spoons or forks left to use, I'm using up a knife and running myself a bath.</p><p>I've changed my bed too, fresh sheets.</p><p>I'm now sat in the bathroom, barely up to keep myself upright, shaking as I type this out, waiting for my bath to fill up enough for me to use it.</p><p><a href="https://eldritch.cafe/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://eldritch.cafe/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://eldritch.cafe/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a> <a href="https://eldritch.cafe/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibro</span></a> <a href="https://eldritch.cafe/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://eldritch.cafe/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonie</span></a></p>
RinUmm… so this happened 🤩<br>
Wheels🧡 great way for me to get around town and take photos 📷<br>
Going to need some practice keeping balance 🤭😳 and finally I can ride something and touch the ground when I stop! <br>
Big thanks to my wonder partner for helping me get this set up 🫶<br>
<a href="https://pixelfed.social/discover/tags/scooter?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#scooter</a> <a href="https://pixelfed.social/discover/tags/wheels?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#wheels</a> <a href="https://pixelfed.social/discover/tags/shortgirl?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#shortgirl</a> <a href="https://pixelfed.social/discover/tags/eds?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#eds</a> <a href="https://pixelfed.social/discover/tags/ehlersdanlossyndrome?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#ehlersdanlossyndrome</a> <a href="https://pixelfed.social/discover/tags/invercargill?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#invercargill</a> <a href="https://pixelfed.social/discover/tags/photography?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#photography</a>
illmarks <p></p><p>Symptom: Coat Hanger Pain</p> <p>I only learned about this term very recently, from yumpsuit on the Fediverse. Thank you so much for letting me know about it!</p><p>I am almost disproportionately thankful to have a handy description for letting people know what I’m feeling, as well as how to look for ways to try to mitigate the pain. Reading about Coat Hanger Pain resonated deeply, in a way similar to how I often feel when I get <a href="https://www.youtube.com/watch?v=uic_3vlI5BE" rel="nofollow noopener noreferrer" target="_blank">a diagnosis</a>: a feeling of relief, connection, community, and hope.</p><p>Many people who have not been chronically ill see a diagnosis as a negative. Indeed, many disabled people are never told their diagnoses, and are never told they are disabled. This needs to change, because as <a href="https://graniteandsunlight.wordpress.com/what-is-disability/#whatis" rel="nofollow noopener noreferrer" target="_blank">Granite and Sunlight</a> explained:</p><blockquote><p>Many people are disabled for a long time before they get a diagnosis which explains what is happening to them, and there is a resistance in the medical profession to giving long-term diagnoses, especially for young people and for women with chronic conditions which lack good treatment options, because of an outdated belief that labels are limiting and they don’t want people to ‘see themselves as disabled’. The fact they are already disabled, already struggling, is why disability justice advocates are trying to help medical professionals change their approach to this. Most people just want answers and context for what is happening to them – not having a name for it doesn’t mean it isn’t affecting their lives. Diagnosis gives people access to context, support and community who can help a person manage the condition better, but these are not built into the medical response to disability. Despite these delays, the person is still disabled all that time, and still needs access to the support and adaptations which can help them live good lives managing their conditions.</p></blockquote><p>For more information about this, I recommend Brianne of No End In Sight’s <a href="https://noendinsight.co/briannes-tedx-talk-disease-begins-before-diagnosis/" rel="nofollow noopener noreferrer" target="_blank">TEDx Talk, Disease Begins Before Diagnosis</a>.</p><p><a href="https://www.illmarks.com/symptom-coat-hanger-pain/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/symptom-coat-hanger-pain/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/art/" target="_blank">#art</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-pain/" target="_blank">#chronicPain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/coat-hanger-pain/" target="_blank">#coatHangerPain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/coathangerpain/" target="_blank">#coathangerpain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/disability-art/" target="_blank">#disabilityArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/disability-justice/" target="_blank">#disabilityJustice</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/dysautonomia/" target="_blank">#Dysautonomia</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/eds/" target="_blank">#eds</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/heds/" target="_blank">#heds</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/longcovid/" target="_blank">#longcovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/neis/" target="_blank">#neis</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/neisvoid/" target="_blank">#NEISvoid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pots/" target="_blank">#POTS</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/spoonie/" target="_blank">#spoonie</a></p>
Rin🤯🤯STICK RACK🤯🤯 well I think it was ment for brooms 🤷🏼♀️ but for me it’s my sticks!! I mainly use the pink one and always have a spare in the car 😀<br>
Being physically fracked isn’t easy but you can be shiny and accessorise with all kinds of things 🤩<br>
<a href="https://pixelfed.social/discover/tags/eds?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#eds</a> <a href="https://pixelfed.social/discover/tags/heds?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#heds</a> <a href="https://pixelfed.social/discover/tags/ehlersdanlos?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#ehlersdanlos</a> <a href="https://pixelfed.social/discover/tags/ehlersdanlossyndrome?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#ehlersdanlossyndrome</a> <a href="https://pixelfed.social/discover/tags/hypermobile?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#hypermobile</a> <a href="https://pixelfed.social/discover/tags/bendy?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#bendy</a> <a href="https://pixelfed.social/discover/tags/dislocate?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#dislocate</a>
Chronic Illness Humor Funny<p>Source: seeking_Trad on insta<br><a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicallyill</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromemes</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpain</span></a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhealth</span></a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointinflammation</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a></p>
ExploreLive feeds
Mastodon is the best way to keep up with what's happening.
Follow anyone across the fediverse and see it all in chronological order. No algorithms, ads, or clickbait in sight.
Create accountLoginDrag & drop to upload